A Great Cause…Baby V and Cystic Fibrosis

Some of you may remember precious Baby V…I captured her with her family last August and will be back to photograph them again this year–they are such a beautiful and special family with hearts of pure gold!  It’s hard to notice past her cute as a button good looks and fiery yet sweet and bubbly personality, but Baby V has cystic fibrosis.  Her parents have amazed me with their strength, courage, and determination to shed light on Cystic Fibrosis and help find a cure for their little girl and all of the others afflicted by this cruel disease.  I’ve known Baby V’s Mom for years, and follow her journal updates about Baby V–she’s brought me to tears more than once with her raw, honest emotion in her accounts of what it’s like to find out, and then live with the fact that your sweet baby has an illness that will make the day to day so much more difficult and likely cut her baby girl’s life all too short.  You know what they say though, anything worthwhile is hard work; and they have embraced the hand they have been dealt with love, compassion, and determination–they are parent’s, and they love their little girl.  They are highly involved in the Cystic Fibrosis community and work hard to do what they can to help find a cure.  Next Saturday they are participating in the Great Strides walk to benefit the Cystic Fibrosis Foundation.  If you have a few dollars to spare, please click on the link below to help donate to the cause.  Thank you!

http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=7200&idUser=438368

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